Showing posts with label duncan. Show all posts
Showing posts with label duncan. Show all posts

Friday, January 17, 2014

Christmas Pajamas -- A Look Back

2009


2010


2011


2012


2013


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Wednesday, January 15, 2014

Christmas Pajamas

We had fun taking our annual Christmas pajama pictures at our new house this year. We actually took these the night that we moved in, which was exactly one week before Christmas!  One of our favorite features of the new house is our fireplace on our back porch.  It was a last-minute addition, we added it during framing, and I'm SO glad we did.  We have enjoyed it so much.  As you can imagine, Graem was itching to build a fire in it, and since we didn't have a tree up we thought it would be a good backdrop for the boys in their Christmas pajamas.





This is Duncan's "Say Cheese" face :-)








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Monday, January 13, 2014

Happy New Year!

Happy new year to anyone who is still out there!  :-)  It's funny how taking a break from something can really make you miss it.  The thing I have missed most about my blog is looking back through my old posts and pictures.  For 2014 I have decided to give it another go.  I've dusted off my "real" camera and am planning to start toting it around with me again.

I started with Mason & Roper's basketball game on Saturday, although the pictures aren't great because I grabbed the wrong lens!  Clearly I'm off to a great start with my return to blogging.  :-)

Team huddle...


Roper with the ball...


#1 fan chowing down on concession stand french fries...


These impressive bench-warming skills came straight from me :-)




I'll be back soon!


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Thursday, March 21, 2013

A Happy Day with a Tinge of Sadness

Duncan's first birthday was the first time I've felt any sadness on the birthday of one of my children.  Usually I think about how I can't remember what life was like before they were born, and how the day they were born seems SO long ago.

With Duncan I feel different.  The past year has flown by with high highs and low lows. 

I feel sad because Duncan is my last baby and his "baby days" are numbered. He is practically weaned at this point and he doesn't need me in the same way that he has for the past year. 

He started crawling exactly a week before he turned 1.  We have been working on crawling for MONTHS.  As happy as I am that he is finally crawling, it is hard watching him struggle.  I feel sad that he doesn't have more time to catch up. 

Turning one is a reason to celebrate, and we did, with family and friends that we love dearly.  But someone was missing. I feel sad that in a few short months we would have celebrated Wyatt's first birthday.  I feel sad that Rob and Kelli know what it feels like to have a precious boy taken away without any warning whatsoever.

I am thankful for Duncan, this precious gift that God has given us, but I can't help but feel sad that my babies are growing up and life is moving on.  Anyone have any suggestions on how I can make time slow down??

This is what the Lord says:  I have heard your prayer and seen your tears.  I will heal you.  2 Kings 20:5


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Wednesday, March 20, 2013

Duncan's First Birthday

Our sweet Duncan turned one on Sunday.  I tried to keep it from happening.  For weeks I whispered in his ear not to turn one.  But he didn't listen to me.  I'm sure that will never happen again!  :)

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This little boy is very LOVED!!

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Tuesday, January 8, 2013

Christmas Pajamas

Can't stop now...

2009
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2010
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2011
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2012
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Monday, December 3, 2012

Lights at the Zoo

Last week my cousin Kate suggested that we take the boys to see the lights at the zoo...she is so sweet...how many college students choose to spend a Friday night with their little cousins?  Then she offered to watch them Saturday morning while I got some Christmas shopping done and Graem hunted.  Yeah, she is pretty great.  (Thanks, Kate!)
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Two monkeys + a goat:
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Happy stinker...
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They had a snow machine at the zoo entrance...M&R were pretty fascinated with the snow...
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Happiness:
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Saturday, November 17, 2012

Test Results & Ramblings

Physical therapy = FUN!!

An update before I forget the details...  :)

In my last post I mentioned that Duncan's neurologist can tell from the MRI that the stroke was caused by a blood clot...so the next steps were to test his blood for clotting disorders and also scan his heart to make sure it was working properly (he was born with a heart arrhythmia, so the neuro thought the clot could have originated in his heart).

The blood work came back normal.  We had a little scare with his heart, which was mostly due to a phone call from a nurse that lacked full information on the results of the echocardiogram.   Turns out he has a small hole in the top of his heart called a PFO which is normal for babies in utero but should close on its own after birth.  It is not something that requires surgery to close; our ped is hopeful that as Duncan grows it will close on its own.  He will have another echo in 6 months to monitor it. 

So...the hole probably caused the arrhythmia...but based on the location of the hole, it did not likely cause the clot.  Which makes the stroke more of a mystery.  A mystery which we will probably never solve.  As much as I would like to know exactly when and why it happened, I have accepted that I probably never will know and it wouldn't change anything going forward, so I'm doing my best to let it go.

We are going to see a different neurologist, although we aren't sure who or where.  We really would like to find a ped neurologist that specializes in infant stroke.  In the meantime, Duncan is continuing weekly PT & OT (and of course we are modeling the exercises at home).  He loves it!  The OT made a hard splint that he sleeps in at night and a soft splint that he wears for part of the day.  The main purpose of the splints is to open his right hand and stretch out his fingers, particularly his thumb. 

We can see some improvement from the therapy.  He has been getting up on hands & knees and rocking like he wants to crawl.  I think it will be a while before he takes off because he has to figure out how to make his right hand/knee move forward, but we are happy that he is trying and the therapists like the symmetry of his "crawling stance."  When he first got up on hands & knees, his right arm was bowed out to the side but now he pulls it right underneath him so that the left and right arms are both straight. 

So...we see improvement, but at the same time the weakness in his right side has become more pronounced.  His left side seems to be getting stronger by the minute and it is just happening much more slowly on the right.  He can now feed himself Puffs or Cheerios with his left hand, as for his right hand, we are just happy if we see him attempt to use it at all.

We are still working on starting Speech Therapy (SLP).  Why would a 7-month-old need speech?  For one thing, he is not really babbling at all.  Although he is not entirely quiet, he is not making syllable sounds (baba, dada, etc).  Sometimes SLPs can help with feeding issues, which thankfully he does not have (as of Thursday he is almost 21 lbs!!).  The most important thing an SLP can help Duncan with at this point is cognitive development.  It is easy to focus on the way the stroke affected his right side because thats what we see, but the brain is a muscle which needs exercise, and SLP can help with that through cognitive exercises.  I'm really curious to see what types of things they will do with him!

Lots of people ask me how I'm doing or how I'm handling all of this...and I have to say I really have a peace about everything.  I don't want Duncan's stroke to define him.  I know we will have bumps in the road...but isn't that part of parenting?  I know Duncan will struggle at certain things...but we all have struggles.  I have my moments of sadness and fear but I'm hoping and praying and doing my best to get past that!  Above all, I know that God has a plan and I know that it is the best plan. He blessed us with Duncan which tells me He knows we can handle this! 

Earlier this year our pastor preached through the book of Ephesians.  I don't think Duncan had even been born when he taught Chapter 3, but several of the verses stuck with me.  I saved them in my iPhone, this is my prayer for all of my children and we used these verses on Duncan's baptism invitations:

"And I pray that you, being rooted and established in love, may have power, together with all the Lord's holy people, to grasp how wide and long and high and deep is the love of Christ, and to know this love that surpasses knowledge--that you may be filled to the measure of all the fullness of God."

Those verses are a reality check for me!  They bring me back to what's important -- teaching my children the love of Christ.  Not to make light of Duncan's condition, but his life will be bigger than what we are going through now.  I'm thankful to be part of it!



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Friday, October 19, 2012

Update on Duncan

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It's been a while since I've posted anything on my blog...and now I'm here to write a post that I can't believe I'm writing.  We have just recently found out that sweet Duncan had a stroke around the time he was born. 

A few months ago we started noticing that Duncan prefers to use his left hand.  In his swing, he always reaches for the orange fish to his left.  In his high chair, he will completely twist around to reach for something with his left hand.  In his exersaucer, his right hand will often fall down into the seat while he reaches and plays with his left hand.

Once we noticed it, we couldn't ignore it.  It's not just that he prefers his left hand, he rarely uses his right hand and when he does he has to work at it -- you can tell.  Also, he almost always rolls to his left, because if he rolls to the right his hand gets stuck underneath him.  When we put him on his stomach, he pushes up with both arms but his right hand stays in a fist.  For that matter, his right hand is almost always in a fist, and he usually holds it close to his chest.

I mentioned all of this to his pediatrician at his 6-month check-up, he saw what I meant, but thought we should wait and see if he started using his right hand more by his 9-month check-up.  I just couldn't shake it.  I knew something was not right.

I called back and asked for a referral to a pediatric physical therapist, which our pediatrician was on board with.  We saw the PT the following week, which at this point was just a short 2.5 weeks ago.  She did a very thorough observation/evaluation and said that she thought his leg and foot might also be affected.  She said that therapy would help Duncan, but that to find out WHY he wasn't using his right side we would need to have an MRI done.

Our pediatrician ordered the MRI and it was scheduled for later that week.  Duncan woke up on the morning of the MRI with his first cold and ear infection, so it was delayed for 5 days so he could get a round of antibiotics. 

It was re-scheduled for last Wednesday. The sedation for the MRI was a disaster.  Apparently it is really hard to sedate a chunky baby because there is a layer of fat covering their veins!  After being stuck 6 or 7 times by 4 or 5 different nurses, we gave up on the sedation.  They re-scheduled us to come back the following week to have the MRI done with full anesthesia.  As a last-ditch effort, they suggested I try to feed him and get him in a good, deep sleep & they would try to do the MRI while he was asleep.  Believe it or not, it worked!  He was so sleepy, hungry & tired of being stuck with needles that he zonked out.  The MRI was so loud, I still can't believe he slept through it!!

That was last Wednesday.  On Thursday morning I left for NYC on a trip that had been planned months ago with some good friends.  The timing was awful for sure...but I knew that me going to NYC would not change the results of the test, so I went.  It was really hard to be away, especially when I got the call from Graem with the results.  He never used the word "stroke," but opted for a gentler "spot on the brain."  We were scheduled to meet with a pediatric neurologist on Monday (this week).  I tried my hardest not to obsess over being away and I did enjoy the trip, but I've never been happier to be home, see the big smile of sweet Duncan and hug all of my boys very tightly!

The neurologist appointment was really hard and took most of the afternoon on Monday.  He explained to us that the stroke was caused by a blood clot that traveled through Duncan's neck to his brain around the time he was born.  It is located in the left parietal lobe.  The neurologist describes it as small, but in the pictures Graem and I were surprised at the size of it (definitely more than just a "spot"). Duncan was born with a heart arrythmia that corrected itself by his 2-week check-up, and the neurologist said it is reasonable to think that the arrythmia could have produced the clot, so he is sending us to a cardiologist for more testing.  We also will have blood work done to check for any clotting disorders (next Monday).

Although the neurologist was mostly encouraging, he also presented us with some realities/expectations that were hard to swallow.  I can't even go into them because I refuse to dwell on what the doctor has said Duncan "can't" do -- only time will tell. 

He started OT on Wednesday, which will continue weekly in addition to PT.  He will likely also start speech therapy soon.  We can already see some improved use of his right hand after just the past few weeks of therapy.  Our PT has commented several times that he is very motivated...he is trying to crawl and will work hard to use his right hand when he is challenged!  You will notice in the picture above, which I snapped with my phone earlier tonight, his right hand is open.  He normally has it clenched/fisted, especially when he is asleep.

We have learned that most infant strokes happen randomly and without cause, and that 40% of infant strokes are fatal.  We are so very thankful that the Lord brought Duncan through the stroke.  I can't bear the thought of what my sweet baby went through but I am so grateful for him and that he is otherwise a very healthy and happy baby!  We are encouraged that he is so young and that the brain is an amazing organ that can re-circuit itself to compensate for damage. We are praying for the best and taking comfort in knowing that in all things God works for the good of those who love Him!



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Friday, July 20, 2012

Four Months Old

Three of the last four blog posts that I've done have been of Duncan & his monthly pictures!  I've taken lots of pictures I just haven't made the time to update my blog.  Now I've let so much time go by that I can hardly remember our trip to Vancouver back in May!!  Hopefully I can go through the pictures soon, which will certainly jog my memory, then I can post them on here because I definitely want to share them!

Little D-Mac is now 4 months old and last weekend he finally started sleeping through the night (cue the "Hallelujah" chorus)!  I'm not sure what he was waiting for.  Mason and Roper slept through the night at 2 months old.  He is also rolling all over the place.  If I swaddle him and put him down on his back he will squirm and wiggle until he's out of the swaddle and then he flips right over.  So, I've given up the swaddle and have started letting him sleep on his tummy (maybe that has helped with the night-time sleep?). 

Now that we're home from the beach I'm making a big effort to get him on a good daytime schedule, with a morning and afternoon nap instead of lots of catnaps throughout the day.  I'm also trying to extend his feedings to closer to 4 hours.  This makes him really mad and usually I give in, after all I don't want to do anything to make him start waking up at 4:00 AM again!  :)

He goes to the pediatrician for his 4-month check-up next week, so I'll post stats then!  For now...

What happened to all that hair he was born with?
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Friday, June 22, 2012

Three Months Old

Getting bigger...

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Wednesday, June 6, 2012

Two Months Old

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I know its June 6th...I promise I took these on May 17th.  I figured I better post them before Duncan turns 3 months old! 

We've been busy the past few weeks; I have some catching up to do (what's new).  Duncan is smiling and laughing and cooing and has turned from his stomach to his back and from his back to his stomach, although he seemed surprised both times.  I don't think it was intentional, but it happened, so it counts.  Although to be perfectly accurate, both occurences were in the past week, so I probably should have saved that news for the "Three Month" post. 

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He really has turned into quite a content little baby, we had some rough weeks, and he still has tummy issues from time to time, but that is not uncommon.  At the suggestion of my cousin Alice and seconded by our pediatrician, we started him on some probiotic drops.  They come in a tee-tiny little glass bottle that costs $40 but they are worth every penny because I really think they've helped him feel better.  There is nothing worse than a baby that you can't comfort!  I also have cut way way back on dairy which might be helping too.  His favorite past-time is being held as much as possible, I'm afraid I've spoiled him, but I'm okay with that!

He is steadily climbing up the charts.  At his 2-month check-up he weighed in at 12.44 lbs (63rd percentile), measured 23" (57th percentile), and head circumference was 15.5" (66th percentile).  He's growing!

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Thursday, April 26, 2012

Catching Up: Easter

I'm determined to catch up on the blog posts that I've had floating around in my head for the past few weeks! My Easter pictures are limited and really random...Duncan had just turned 3 weeks old at that point and the whole weekend is kind of a blur! Thursday we went to the zoo with friends...Friday we cooked out & hunted eggs with friends...Saturday we had our church egg hunt at the beautiful Saluda River Club outdoor center...and Sunday we celebrated the resurrection of our Savior with a beautiful church service followed by visiting family at the farm. Easter baskets were sort of an afterthought for us this year. The week before Easter I took M&R to get Easter shoes and Mason begged to try on these: new balance Me: "We aren't here for tennis shoes, we are only getting Easter shoes." Mason (on the way out of the store): "That's okay, Mama. You don't have to buy those orange shoes for me. The Easter Bunny knows I want them and he'll bring them to me." Yeah. There could be worse things that a little boy wants from the Easter Bunny, right? At least shoes will be worn and they are definitely better for him than a bunch of candy! So, the Easter Bunny obliged Mason's #1 request and also brought some for Roper. (For some reason my iPhone photos turn out blurry when the flash is on) IMG_0545 Please note the shoes and ignore the fact that my child brought a huge stick in the house. IMG_0550 We made these "resurrection rolls" on Easter morning. They turned out just right and were really tasty!
All of the ingredients have a meaning...the dough represents the cloth that Christ was wrapped in; the marshmallow represents Jesus, all white and pure because he was without sin, etc. Hopefully we can make this a tradition! IMG_0547 IMG_0548 IMG_0549 Here are Mason and Roper right before leaving for church: DSC_0657 While we were at the farm Duncan got to meet Gigi. Here is Gi with her eighth great-granchild! DSC_0664

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